What Does Fundraising Support?

Walk With DeCo donates all proceeds from fundraising efforts for much needed medical research to improve quality of life and life expectancy for adults and kids with Vascular Ehlers Danlos Syndrome.  Currently, there is almost no research on VEDS.  Walk With DeCo holds an annual Turkey Trot in Spring Creek on Thanksgiving, a children’s bake sale “Cookies 4 VEDS” stand, and an annual Pickleball 4 VEDS Tournament, with a goal of raising $1MM nationally over the next 5 years to fund medical research at Texas Children’s Hospital, led by Dr. Shaine Morris (renowned pediatric cardiologist). 

To date, Walk With DeCo has raised over $75,000 thanks to the generosity of the community.

You can keep it going by donating HERE

More information about where Walk With DeCo funds are going:

Dr. Shaine Morris, MD MPH, Pediatric Cardiologist at Texas Children’s Hospital, is leading an effort to create the first database of its kind called CLARITY (Collaborative for Longitudinal Aortic Research In The Young) for the medical community and families with those living with rare genetic congenital heart disorders. The central repository allows medical staff to conduct more collaborative research to increase understanding of rare diseases like Vascular Ehlers Danlos and help provide better care for their patients.  Our goal to raise $1MM over the next 5 years is to fund a predictive model around vascular events in the VEDS community, as well as an exercise study to better understand safe levels of activity to prevent childhood and early death and improve quality of life for people with VEDS.