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About DeCo
Hi, my name is Mike, many of you know me as DeCo (pronounced “Deeko”). I have Vascular EDS, we call it VEDS (the EDS stands for Ehlers-Danlos Syndrome). It’s a rare and serious genetic connective tissue disorder. I did not find out that I had this condition until about 5 years ago, when I was 37 years old. My Dad died of an aortic dissection when I was 7 years old, so this news at 37 ended up explaining a 30 year mystery.
The Crisis
In January of 2021, completely out of the blue, I suffered an acute 3.5 inch dissection of my right iliac artery leading down to my femoral artery...within minutes my leg and foot started to go numb. I was rushed to the hospital and ended up having a 5-hour limb-saving and life-saving surgery. Crisis = Opportunity. I want to use this experience for great. I want to raise awareness and funds for the Vascular EDS community. People need to know about this condition and we need more money for continued research.
The Opportunity
The "Walk with DeCo" Mission in 2021 was simple: Walk 4,000,000 steps and raise $40,000 for Vascular EDS. Now we are keeping the momentum going with various fundraising events throughout the year!
HOW YOU CAN HELP...
- Donate if you can, any amount helps! You’ll be helping me, my family, and all families impacted by this serious genetic condition.
- Please like all of my upcoming posts and videos on social media to help spread the word about this mission!
- Also subscribe to my podcast and follow the journey.
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